Archive for November 7th, 2007

Seven years ago, today, I gave birth to Sullivan. He was our miracle baby, right from the start. He had an honest to goodness knot in his umbilical cord and according to the doctor, he should not have survived the vaginal birth he had, due to the cord tightening and blocking his oxygen. We were so thankful to have him with us and to apparently be unharmed by his experience.

His birth went much like his sister’s, which I wrote about two weeks ago. With him, I woke up in the morning and rolled out of bed to use the toilet. No sooner had I stood up than my water broke. Lucky I wasn’t in bed at the time, eh? There was a bit of a gush at first, but then it slowed to a trickle. I roused Toph out of bed with the news, and then went about getting dressed, getting my daughter dressed, and letting my father in law know that we were heading for the hospital so he’d be in charge of Jillian. We lived with my inlaws at the time, so there was no need to overly upset Jillian’s routine, except that she was excited to spend the day with her grandpa.

Labor and delivery took about six hours from the time my water broke to the time of delivery. I remember at one point, rocking in a rocking chair in my room and having my water break for the second time. We had a lake surrounding me and the rocking chair then. It was pretty amusing at the time.

I had a paper bag over my face during transition, rather than the oxygen mask I had worn with Jillian. I think I preferred the oxygen mask. :P

At one point the doctor turned the overhead mirror to help me see what was going on DOWN THERE. I screeched at him for that. Turn that damn thing away from me! Seeing what’s going on makes it hurt more! i didn’t even want to put my hands down to feel the baby’s head emerging. No thanks!

He was 8lbs 7oz. at birth, and 20 inches long. He had a head of blondish, brown hair, not dark like his sister. He was beautiful. He was a champion nurser…he knew what he was doing right away.

Alot of the happy memories of his birth are shadowed for me now. The events that took place when he was 5.5 weeks old make those first 5 weeks a blur in my head. I tend to remember the pregnancy, which was hard on my body. The first three months were spent sick as a dog and dehydrated while the OB’s office ignored my cries for help until I resorted to the General practitioner’s office to get me the help I needed. (I was admitted to the hospital for rehydration at that point and did much better afterwards.) I lost a lot of weight in that first trimester. (ah pregnancy. The easiest diet plan I’ve ever been on! :P )

The last trimester was punctuated with odd sleeping spells and learning that I had gestationally induced impaired glucose tolerance. It is a precurser to gestational diabetes. Although my OB was totally unhelpful on these counts (his advice was simply not to eat the things that made me sleepy/passout, which would have been difficult since just eating a regular meal would do it to me) I did see a dietician who helped me get things under control. It was a lesson in self control and self preservation.

In any case, my Sullivan, with his blue blue eyes and his curly blonde hair, was a beautiful baby boy. He was much loved even before his birth and we cherished all the time we had with him. I remember this day with both happiness and sadness. It was the beginning of the end of my age of innocence. His birth began a journey to a world where I could no longer drift by in a haze of blissful happiness, satisfaction with life, and with the knowledge that “IT” could never happen to me. I learned in a very hard way that “IT” most assuredly could happen to me and my family.

Happy Birthday, Sully boy. I often dream of what you would be like now, had things not happened as they had, or even what you’d be like if you’d continue to live despite all of the things working against you. Every time I see a little boy about the age you would be, I get sad and wistful. I never have understood how The Powers That Be could make you endure all that you did, nor how they could punish our family for simply wanting to have you with us to love. You were born of love and died surrounded by that love. Whatever way you exist now, I hope you know that we loved you with everything we had, from beginning to end.

This looked interesting…a book meme I stole from Lanie

Anyway, on with the list. Copy it and . . .

Bold those you’ve read.
Italicize books you have started but couldn’t finish.
Add an asterisk* to those you have read more than once.
Underline those on your To Be Read list.

Jonathan Strange & Mr. Norrell
Crime and Punishment
Catch-22
One Hundred Years of Solitude
Wuthering Heights
The Silmarillion
Life of Pi: A Novel
The Name of the Rose
Don Quixote
Moby Dick
Ulysses
Madame Bovary
The Odyssey
Pride and Prejudice
Jane Eyre
A Tale of Two Cities
The Brothers Karamazov
Guns, Germs, and Steel: the Fates of Human Societies
War and Peace
Vanity Fair
The Time Traveler’s Wife
The Iliad
Emma
The Blind Assassin
The Kite Runner
Mrs. Dalloway
Great Expectations
American Gods
A Heartbreaking Work of Staggering Genius
Atlas Shrugged
Reading Lolita in Tehran
Memoirs of a Geisha
Middlesex
Quicksilver
Wicked: The Life and Times of the Wicked Witch of the West
The Canterbury Tales
The Historian
A Portrait of the Artist as a Young Man
Love in the Time of Cholera
Brave New World
The Fountainhead
Foucault’s Pendulum
Middlemarch
Frankenstein
The Count of Monte Cristo
Dracula
A Clockwork Orange
Anansi Boys
The Once and Future King
The Grapes of Wrath
The Poisonwood Bible
1984
Angels & Demons
The Inferno
The Satanic Verses
Sense and Sensibility
The Picture of Dorian Gray
Mansfield Park
One Flew Over the Cuckoo’s Nest
To the Lighthouse
Tess of the D’Urbervilles
Oliver Twist
Gulliver’s Travels
Les Misérables
The Corrections
The Amazing Adventures of Kavalier and Clay
The Curious Incident of the Dog in the Night-Time
Dune
The Prince
The Sound and the Fury
Angela’s Ashes
The God of Small Things
A People’s History of the United States: 1492-Present
Cryptonomicon
Neverwhere
A Confederacy of Dunces
A Short History of Nearly Everything
Dubliners
The Unbearable Lightness of Being
Beloved
Slaughterhouse-Five
The Scarlet Letter
Eats, Shoots & Leaves
The Mists of Avalon
Oryx and Crake
Collapse: How Societies Choose to Fail or Succeed
Cloud Atlas
The Confusion
Lolita
Persuasion
Northanger Abbey
The Catcher in the Rye
On the Road
The Hunchback of Notre Dame
Freakonomics
Zen and the Art of Motorcycle Maintenance
The Aeneid
Watership Down
Gravity’s Rainbow
The Hobbit*
In Cold Blood
White Teeth
Treasure Island
David Copperfield
The Three Musketeers

I’d like to take today, November 7th, to remember the larger village that supports our family.  In particular, I want to recognize groups that have helped my family through the hardest of times.  They made the darkest days a little easier to bear, and shared in every day triumphs that we celebrated through those dark times.

Without our family, we would have been lost.  Our parents gave so much of their time and energy to make our lives easier, and better, during Sullivan’s lifetime.  My in laws took time daily with both of our children, giving us breaks whenever they could.  We lived with them in the beginning of Sullivan’s life and they wrapped us up in their love and support through all that we went through.  It was tense, stressful, heartbreaking at times, but we could not have made it through those first four months TOGETHER without their help.  My own parents took time off of work to be there through the first week in the hospital with Sullivan.  After he was released, they came out once a month for a weekend and gave us what breaks they could.  Toph and I went away for our anniversary that year, and it was largely because our parents (both sets) took it upon themselves to care for our children for the weekend and honestly, they shoved us out the door.  They were not only caring for their grandchildren, but for their children.  We so  needed the time away to recharge.

Our siblings gave us emotional support, and also help with the kids (especially with Jillian).  My brother, who I think has a dislike of phones since I rarely talk with him, was very careful to be sure that I knew I could call him at any time if I needed to talk with him.  He and I may  not be close on a daily basis, but he’s always been there when I needed a shoulder.  My sister in law was always there and ready to be the “Best Aunt in the World” and she helped tremendously with Jillian throughout Sullivan’s life.  She was also always ready to cheer Sullivan on to new accomplishments.  These are just examples of the support our siblings gave us.

Friends of ours and of our families pulled through in amazing ways.  When we brought Sullivan home from the hospital with a trach and a gtube, requiring 24 hour care every day of the week, we had friends bringing us dinner once a week so that we wouldn’t have to worry about it.  We had friends helping us with our daughter in the afternoons so that I was free to concentrate on Sullivan and all the administration details that went along with doctors and insurance.  We had friends mailing and emailing us words of encouragement, sending prayers winging our way from long distances, and holding us in their thoughts with love and support.  Without the encouragement of all of these people, we would have felt very  alone as we struggled along.

Then we get into the groups and organizations that helped us.  The hospital where Sullivan spent a lot of his life was wonderful.  I can’t say enough good things about the doctors and nurses of Toledo Children’s Hospital.  They took care of our son with skill and compassion.  They also took care of us, the family, with a sensitivity that warmed our hearts.  One nurse in particular took care of Sullivan, and she seemed to have adopted our family too.   She would bully me to sleep, or to eat, or push until I released the overwhelming feelings that I was holding back.  Then she’d hug me as I cried.  I’m sure none of that was in her job description, but she went the extra mile and we’ve always been thankful for her care.

The Ronald McDonald House Charities of Northwest Ohio provided us a place to stay that was steps from the hospital.  They claim it is the house that love built, and since our many stays with them I believe it is also the house that builds love.  I can’t go into the many ways this organization helped our family today, but look for more about them later this month.  Time spent in Toledo at the hospital with Sullivan would have been far more difficult, though, had the RMHC not been there.  We continue to be very thankful for their support.

The Defiance Area Visiting Nurses and Hospice, the Caring Way were instrumental in caring for Sullivan at home throughout his life.  They were caring people who  responded to our son’s needs and to ours with compassion and support.   This is another group that I cannot say enough good things about.  I probably would have gone mad had it not been for their willingness to talk with me when they visited to take care of Sullivan.  They were often the only contact I had with the outside world for weeks, aside from family.

Sullivan also had several therapists and state-provided case workers who took the extra time with him, and who became beloved members of our extended family.  We treasure the memories each of these people gave to us, the time they spent urging Sullivan on to do more, and the encouragement they gave  us as they worked with him.  We continue to appreciate all of the efforts they made to help Sullivan reach for his full potential.

 I know there are people I have not mentioned by name, or even directly alluded to.  If you read this, please know that I appreciate every thing you’ve done for our family through Sullivan’s life and since then.  Without our “Village” to support us, we would not have been able to survive the hardest times we’ve ever had to face.  Without all of you who made your presence known to us, we would have felt very alone.

My thanks to everyone who supported us and continues to send us encouragement.  You all make my days come alive.

This post has been written in memory of Sullivan Ira.  November 7th was his birthday.

10,322 words now. Whee!!!! I’ve broken the 10,000 mark!